Detecting Sickle Cell Disease before it’s too late

A tragic loss and a second chance: On World Sickle Cell Day (19th of June), Sarah and Lisa's story highlights how crucial well-trained healthcare professionals are for the early and effective treatment of sickle cell disease.

When Sarah Mutende lost her infant son to what she later suspected was undiagnosed sickle cell disease (SCD), it was a tragedy rooted in a lack of knowledge. At the time, the local clinic lacked both the tools and knowledge to recognise the warning signs — swollen legs, high fevers, and fatigue. Without knowing what to test for, the health workers sent the baby home without treatment. Before his first birthday, he had passed away.

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